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Coaching Compliance With Chronic Medical Restrictions

A parent writes: Our ten year old was recently diagnosed with juvenile diabetes. Although she first showed much courage and cooperation with medical treatments and restrictions, things have changed. Now she is angry and defiant. We are worried about her health but don’t want to come down too hard. Suggestions?

All parents are familiar with the pacifying and policing roles required when children experience broken bones or sickness. Sacrifices of enjoyable activities and the discomforts of illness are assuaged by the reassurance that these problems are temporary. Most children reluctantly accept the restrictions, often aided by parents’ indulgence with favorite foods and other goodies.

Children have a much harder time accommodating to such limits when chronic conditions, such as diabetes, are thrust upon them. Placating them with treats can create more problems. Parents often find themselves thwarted in their attempts to soothe and supervise. Here are some coaching tips to consider:

Recognize the impact of the condition upon the child's developmental push for independence and autonomy. It is traumatic to suddenly discover that one's activity level and eating habits must now be carefully monitored and reported. This circumstance can trigger painful feelings of being trapped in a defective body, thoughts of being unfairly denied what other kids take for granted, or angry impulses to throw caution to the winds and eat whatever and whenever. Parents need to be prepared for this emotional backlash to the diagnosis, and respond with patient listening and gentle guidance.

Structure discussion by talking with your child about the challenges faced. Some children are particularly troubled by the dietary restrictions while others dread the injections or medications. Sometimes a shaky relationship between parent and child becomes more contentious with the advent of a chronic condition. Eating meals with carefree peers may stir up resentment and jealousy. Rate the challenges from least to greatest on paper and explain how more self-control and strategic planning is required as you go up the list.

Extend the list into a kid-friendly plan of action that pairs each challenge with a coping strategy. For example, the temptation to eat banned snacks might be described as a "snack attack." Review the circumstances and times when such attacks are most likely. Document which permitted snacks can help them overcome the attacks and mental distractions that are beneficial. These include talking to a family member, reading a book, watching a movie, writing in a journal, or practicing an instrument. If these don’t work, explain that it might be necessary for your child to come to you with the following, " I'm feeling tempted by a snack attack. Can you help me not give in to it?"

Consider the psychological task of acceptance, for both of you. Unlike most other hurdles in childhood, it can take tremendous time and mental energy for children to truly assimilate the restrictions into their lives. Psychological forces can help and hinder this process, depending upon the stages of development and personality of the child. Parents are also urged to consider their own feelings about their child‘s plight. A parent’s guilt, anger, and sadness, to name just a few, can complicate the child's attempts to reconcile themselves to the rules and restrictions. Parents can help the acceptance process move forward by having open and informed discussions without allowing their own fears and emotional baggage to interfere.

 


Dr. Steven Richfield is a child psychologist in Plymouth Meeting, PA. He has developed a child-friendly self-control/social skills building program called Parent Coaching Cards. His new book, The Parent Coach: A New Approach To Parenting In Today’s Society is available through Sopris West (sopriswest.com or 1-800-547-6747) He can be contacted at www.parentcoachcards.com or 610-238-4450




 


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